Home Thank You! Schedule Myelodysplasia Frequent Questions Guest Book Guest Book Entry


Tentative Schedule

Friday, April 1, 2005 Move to Rochester - done
Thursday, April 7, 2005 Blood drawn for over 15 different test, urine test, bone marrow biopsy, 24 hr. urine test, stool sample, electrocardiogram, pulmonary function tests, social worker meeting, chest and sinus x-rays, echocardiogram - done
Friday, April 8, 2005 Meeting with nurse in transplant unit, spinal tap - done
Saturday, April 9, 2005 Blood test to determine hemoglobin level (determined I needed a transfusion - done
Sunday, April 10, 2005 Blood transfusion of two units - done
Monday, April 11, 2005 Meeting with oral surgeon to see if any mouth infections or decay, meeting with psychologist to see if Deb and I are up to the mental challenge - done
Tuesday, April 12, 2005 Meeting with nurse practitioner in transplant center to explain entire process, meeting with surgeon that will install Hickman venous catheter in my chest, meeting with nurse practitioner and transplant doctor to summarize test results and review next steps, blood drawn for total blood counts again to prepare for chemo - done
Wednesday, April 13, 2005 Begin wearing mask any time outside the apartment, begin taking Actigall, which helps prevent liver injury from the chemotherapy - done
Friday, April 15, 2005 Total blood test, meet with doctor that is a "fellow", meeting with nurse practitioner and transplant doctor - done
Sunday, April 17, 2005 Begin Dilantin treatment to prevent seizures from chemo, hemoglobin and platelet transfusion in the afternoon into evening - done
Monday, April 18, 2005 Continued Dilantin treatment, surgery to implant Hickman IV port in my chest, pre-chemo haircut, check into transplant unit in hospital at 8:00pm - confirm internet access - done
Tuesday, April 19, 2005 Begin chemo with Busulfan and many other precautionary drugs - done
Wednesday, April 20, 2005 Continue chemo with Busulfan - done
Thursday, April 21, 2005 Continue chemo with Busulfan - done
Friday, April 22, 2005 Continue chemo with Busulfan, last day of Dilantin - done
Saturday, April 23, 2005 Continue chemo with Cytoxan, install urinary catheter to continuously flush bladder - done
Sunday, April 24, 2005 Continue chemo with Cytoxan (last day of chemo) and bladder flush - done
Monday, April 25, 2005 Rest Day!! Urinary catheter removed, anti-rejection drug Cyclosporin begins, also need a red blood cell transfusion - done
Tuesday, April 26, 2005 My international donor cells will not arrive until Wednesday morning. So, I will have an easy day of rest and a pass to leave the hospital for a while - done
Wednesday, April 27, 2005
Day 0
STEM CELL TRANSPLANT DAY - The stem cells should arrive at Rochester airport about 10:30am. Then, they will be inspected by the Mayo Lab before bringing to me and transfusing into me under close supervision for possible reactions - done
Thursday, April 28, 2005
Day 1
Begin Methotrexate and other anti-rejection medicines to reduce problems with new cells. Got released from the hospital at 2:30pm - done
Friday, April 29, 2005
Day 2
Move to outpatient management. All drugs at this point are to reduce risk of complications and help manage nausea and diarrhea. Report to hospital at 12:30pm. - done
Saturday, April 30, 2005
Day 3
Daily outpatient checks at the hospital for complications, possibly move back into hospital if lengthy treatment needed. But can most likely stay in apartment. Got second of small dose chemo to help Graft VS Host disease - done
Sunday, May 1, 2005
Day 4 thru
Tuesday, May 3, 2005
Day 6
Daily management of condition. Process is to report change, discuss alternatives, switch to new strategy and then note progress. During this time, suffered from nausea, dehydration, swollen tongue, skin rash, loss of some body hair, and fevers. Changed many drugs to others that may work better or have reduced side effects. Readmitted to hospital - done
About Day 15 Should be producing my own blood by now - starting with white blood cells, then red and finally platelets - begun
Day 18 Released from hospital to outpatient status - done
About Day 27-100 May begin to see symptoms of graft versus host disease - two bouts with skin rash so far
About Day 50 Most likely earliest date to move home to Orono, but report to Mayo twice a week - been home every night since June 9th (Day 43)
About Day 100 Earliest day to discontinue weekly checkups at Mayo - this finally happened at about January 12th, 2006 or Day 260.
Day 274 My doctor scheduled my next appointment for one month away - my longest break!
About One Year (May 2006) Should begin to feel normal again, although energy level may never return to 100% - done
4 Years (May 2009) I had my last visit with my doctor at Mayo Clinic. Just regular doctor checkups from now on - done